Living with Autism: The Parents' Stories

Kathleen M. Dillon

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Summary:

This book presents the experiences of six parents who are raising children with autism to illustrate the difficulties faced by families coping with this disability. The first part of the book reviews the professional literature on the experiences of parents of individuals with autism. It addresses the definition of autism, difficulties with diagnosis, confusion over labeling, unanswered questions of cause, the grief and sorrow parents experience, trials of day-to-day living, trying to get adequate treatment, stresses on the family, uncertainty about the long range forecast, social stigma, and surviving and transcending. The second part is a series of personal interviews with the six parents of the individuals with autism. The cases presented represent children with autism of a variety of ages, of both sexes, of different abilities and symptoms, and of different degrees of improvement. This sample also represents a wide variety of parental ages (from 20's to late 40's), of types of family structure (including traditional, adopted, foster, and single-parent headed by mother or father), of parental level of education (ranging from high school to advanced degrees), and of types of parental occupation (blue collar to professional). Appendices include the parents' questionnaire and suggestions or parents. (Contains 98 references.)
 

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Bibliographic Information:

Kathleen M. Dillon. Living with Autism: The Parents' Stories (1995). Parkway Publishers, Inc.: Boone, NC. (235 pages).

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Formats Available: Printed Material

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(Contact publisher regarding price )

Parkway Publishers, Inc.
P.O. Box 3678
Boone, NC
28607

Phone: (704) 265-3993
Fax: (704) 265-3993

Email: aluri@netins.net

Languages Available: English

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